Privacy Policy

Dale Needham, FCPA, MD, PhD, is Director of the Outcomes After Critical Illness and Surgery (OACIS) Group at Johns Hopkins University School of Medicine. OACIS is a multidisciplinary clinical and research group focused on understanding and improving patient outcomes after critical illness and surgery. OACIS activities include clinical quality improvement projects and research focused on longitudinal, long-term patient outcomes assessments, both locally and nationally, with evaluation of physical, cognitive, and mental health outcomes.

Via our website (, we aim to share resources, funded by a competitive, peer-reviewed grant from the U.S. National Institutes of Health (NIH), with researchers in this field.

What personal data we collect and why we collect it:


We collect a very small amount of data for each website registrant. These data are limited to your Username, plus the following data fields that you may have voluntarily provided during the website registration process: First Name, Last Name, Institutional Name, Email address, Country and State. Additional optional data fields that can be completed after registration are: Website address, Biographical Information, and Profile picture.  In addition, the registration process automatically records the IP address of the computer used during the registration process.


If you log into this website, a temporary cookie is set to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, several cookies are set to save your login information and your screen display choices. Login cookies last for two days, and screen display cookies last for 1 year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

Embedded content from other websites 

The website may include embedded content (e.g. videos, images, articles) if such content is believed to be credible, valid and valuable to our registrants. Embedded content from other websites behave in the exact same way as if you had visited the other website.

These other websites, if accessed from, may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracing of your interactions with the embedded content if you have an account and are logged in to that website.

How long we retain your data? 

For users who register on our website, we store the personal data provided in your User Profile. All users can view, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

Do we share your data with other groups or companies? 

No, we do not share your data with third parties.

What rights you have over your data? 

If you have registered on this website, you can request to receive an exported file of the personal data we hold about you (i.e., any data you have voluntarily provided to us)–these data also can be directly viewed by you in your User Profile at, as explained above and below). You also can request that we erase any personal data we hold about you. If you would like to receive an exported file of the personal data we have collected, please contact us.

Instructions on how to view, edit, and delete your data:

Viewing and editing your data 

You are able to view and edit your information at any time. If you would like to view or edit your information, please click “Improving Long-Term Outcomes Research fo…” in the top left of the screen.

Then, click “Profile” on the left side of the screen. Once you have edited the information, click “Update Profile” on the bottom of the screen and your updated information will be saved. You are able to edit all of your information, except username.

To return to the site, click “Improving Long-Term Outcomes Research fo…” in the top left of the screen.

Deleting your account 

You are able to delete your account at any time.  If you delete your account, you will no longer have access to the NIH-funded resources in the website.

If you would like to delete your account, please click “Improving Long-Term Outcomes Research fo…” in the top left of the screen.

Then, click “Profile” in the left-hand side of the screen.

Then scroll down to “Delete Account”.

When you click on the icon, you will be shown a warning that deleting your account will delete your access to our website. If you would still like to delete your account, please indicate “agree”. Then, the system will immediately delete your account.